ERN CRANIO is the European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders. Many individuals with rare and/or complex craniofacial anomalies and ENT disorders across Europe may struggle to get a diagnosis or treatment. Reasons for this may include: a lack of clinician awareness and knowledge of the treatment options, limited information available for both patients and healthcare professionals and/or an absence of professional skill in diagnosing and treating these rare or complex conditions.

ERN CRANIO seeks to facilitate cooperation between multidisciplinary experts across Europe to support the provision of high quality care. 

The network seeks to:

  • Set up a referral network for patients with craniofacial anomalies, cleft lip/palate, orthodontologic anomalies, and ENT disorders
  • Improve quality of care
  • Identify best practice and monitor effectiveness through the use of standardised outcome measurement
  • Stimulate innovation by conducting multi-centre research projects
  • Support the continuous learning and development of all members and affiliated partners
  • Disseminate expert knowledge across Europe and beyond