ERN CRANIO is the European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders. The network was officially launched in March 2017.
ERN CRANIO is a network of expert multi-disciplinary healthcare professionals from specialised healthcare providers across Europe (‘ERN CRANIO members’). ERN CRANIO has 22 member hospitals across 10 EU member states.
ERN CRANIO aims to pool together disease-specific expertise, knowledge and resources from across Europe to achieve health goals that may otherwise be unachievable in a single country. Such health goals include:
In doing so, ERN CRANIO also seeks to reduce health inequalities across Europe by standardising practices and making high-quality care, information and resources accessible to healthcare providers, patients and their families/carers across Europe, regardless of where they are located.
To achieve these aims, ERN CRANIO works to meet the following objectives:
ERN CRANIO monitors and evaluates these activities in accordance with the ERN-wide monitoring framework.