Do you have or know someone with a rare and/or complex craniofacial anomaly or ENT disorder? Are you struggling to get a diagnosis or treatment?
Are you a healthcare professional looking for highly specialised advice?
ERN CRANIO may be able to support you.
Patients cannot refer themselves directly to receive the support of an ERN. However, with a patient's consent and in accordance with the rules of their national health system, a patient’s information can be referred to the relevant ERN member in their country by their local healthcare provider. Their local health care provider can then access expert advice from the network, if this is needed.
If you are a patient or family member interested in accessing support from ERN CRANIO, we encourage you to speak to your local healthcare provider. You can let them know about ERN CRANIO, a multidisciplinary network of highly specialised healthcare professionals from across Europe who may be able to provide expert advice.
Here is a downloadable flyer and video link that you can give to your healthcare provider for more information.
These are available in all European languages and can be accessed via this link under 'Related information': https://ec.europa.eu/health/ern_en