Organisation of ERN CRANIO

Each ERN has a coordinating healthcare centre. ERN CRANIO is coordinated by Erasmus MC in Rotterdam, The Netherlands. Prof. dr. Irene Mathijssen is the coordinator and Dr. Sara Versnel is the deputy. Renée de Ruiter and Olivia Spivack are the project managers. 

There are three diagnostic groups covered by ERN CRANIO:

- Craniosynostosis and other craniofacial anomalies

- Cleft lip/palate and orodental anomalies

- ENT disorders

Network activities:

The network engages in seven areas of work, which are applicable to all three diagnostic groups;

1. Management activities 

2. Dissemination activities 

3. Evaluation activities 

4. e-Health 

5. Training 

6. Standards of Care 

7. Outcome measurement

You can read more about network activities here.