Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ear, nose and throat (ENT) disorder? Are you a healthcare professional looking for highly specialised advice?

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The European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders


Latest News


ERN GENTURIS tumour surveillance guidelines for individuals with neurofibromatosis type 1

18 januari 2023

The open access version of 'ERN GENTURIS tumour surveillance guidelines for individuals with neurofibromatosis type 1' is available online! A great achievement and we are very proud that the ERN CRANIO coordinator Prof. dr. Irene Mathijssen contributed to this work!   Link: 

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ERN CRANIO live on Instagram!

9 december 2022

We are now live on Instagram! Follow us on instagram by searching for erncranio, or click on the link below:

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EJP Research Mobility Fellowship is now open until November 18th!

3 oktober 2022

EJP RD is pleased to announce that the 6th Research Mobility Fellowship call is open until November 18th! The programme aims to support PhD students, postdocs and medical doctors in training to undertake scientific visits to foster specialised research training outside their country of residence. The exchange can be carried out (1) within the same ERN (Full Members and Affiliated Partners), (2) between different ERNs (Full Members and Affiliated Partners), or (3) between ERN Full Members / Affiliated Partners and non-ERN institutions. Either the home or host (secondment) institution must be a Full Member or Affiliated Partner of an ERN at the time of application and during the proposed period of the training stay. Successful applicants should acquire new competences and knowledge related to their research on rare diseases, present a defined research plan and provide a demonstrable benefit to the ERN of the home and/or host institution. The Research Mobility Fellowships are for stays of 4 weeks to 6 months duration. Please spread the word! The call text and all relevant information can be found here.

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