Patient versions of clinical guidelines

Craniofacial microsomia

ERN CRANIO has developed a European guideline on craniofacial microsomia, which was published in the Journal of Craniofacial Surgery in November/December 2020. 

A version tailored specifically for patients and their families is also available (2021).

Craniosynostosis

ERN CRANIO endorses the updated Dutch guideline on the treatment and management of craniosynostosis (2021). A summary visual for patients and families is currently in development.

Pierre Robin Sequence

An ERN CRANIO clinical guideline is currently in development. A version tailored specifically for patients and their families will also be developed.