Clinical guidelines

Craniofacial microsomia

ERN CRANIO has developed a European guideline on craniofacial microsomia, which was published in the Journal of Craniofacial Surgery in November/December 2020. 

A version tailored specifically for patients and their families is also available (2021).


ERN CRANIO endorses the updated Dutch guideline on the treatment and management of craniosynostosis (2021): 

Cleft lip/palate

ERN CRANIO endorses the Dutch guideline for 'schisis' (Published in 2017) [The term “schisis” in Dutch encompasses all types of facial clefts, most commonly clefts of the lip and/or palate]

In 2018, this Dutch guideline was translated into English which was funded by ERN CRANIO: English version of the Dutch guideline for 'schisis' 

[The type of cleft is clearly specified where needed as there is no direct English translation for the Dutch word 'schisis']. Click here for more information on this translation work.