This area of work refers to the day-to-day management and coordination of the network and its activities.
This area of work refers to the distribution of information on ERN CRANIO activities, outputs and events and ERN-developed resources to healthcare professionals, patients and their families/carers across Europe and beyond.
This area of work refers to the practice of monitoring ERN CRANIO’s activities and performance. This is completed in line with the ERN-wide monitoring framework.
This refers to clinician use of the EU-developed online platform; the Clinical Patient Management System (CPMS). It also refers to the development and/or use of e-resources and tools and the development of an ERN CRANIO patient registry.
This area of work refers to activities related to the development, revision and implementation of care standards (including clinical guidelines and consensus statements). This also refers to the implementation of standardised outcome sets for standardised data collection.
An ERN CRANIO ‘Scientific committee’ is also in place to facilitate multi-centre research.
This area of work refers to activities related to the development and provision of training and educational materials, targeted at healthcare professionals, patients and families/carers.
Please contact the ERN CRANIO project managers for more information on network activities.