e-health

The Clinical Patient Management System (CPMS)

The CPMS is a web-based clinical software application allowing healthcare providers from all over the EU to work together virtually to diagnose and treat patients with rare, low prevalence and complex diseases. The CPMS is accessible to all ERN CRANIO members. However, ‘guest accounts’ can also be granted for healthcare professionals from non-member countries should they wish to seek expert advice from the network.

Activities:

  • Encouraging active use of CPMS: ERN CRANIO encourages healthcare professionals within the network to use the CPMS. We aim to support individuals with their registration and share positive experiences of using the platform with our members.
  • CPMS training: The European Commission organises regular webinars on the CPMS. ERN CRANIO plays an active role in disseminating information on these webinars to members.

Other priorities:

  • ERN CRANIO customised data set in CPMS: We hope to develop ERN CRANIO-specific data sets on the CPMS
  • Development of an ERN CRANIO registry