Call for ERN rare disease registries

Posted on 12 July 2019

The Consumers, Health, Agriculture and Food Executive Agency (CHAFEA) has published the Annual Work Programme 2019 call for grants under the Third Programme for the Union’s action in the field of health (2014-2020), which includes the call for Rare disease registries for the European Reference Networks (ERNs) (PJ-01-2019)!


5/24 ERNs have already received funding from the Health Programme (Annual Work Programme 2016) and have/are currently developing their own rare disease registry. This call is now open for the remaining 19 ERNs to apply for financial support (200 000 EUR per ERN)


The ERN CRANIO network will submit an application and preparations have started.



Call publication: 14 May 2019

Opening of submission: 21 May 2019

Current deadline for applications: 10 October 2019

Starting date: March 2020