Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ear, nose and throat (ENT) disorder? Are you a healthcare professional looking for highly specialised advice?

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The European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders


Latest News


ERN CRANIO newsletter

9 June 2022

  Issue 11 of the ERN CRANIO newsletter is now available, which highlights upcoming events and opportunities - including the ERN CRANIO annual meeting which is due to take place in Berlin in November 2022.  Read more here.    

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Open afternoon: speech, communication and resilience training programme

25 May 2022

  On 9th June 2022 (14h30- 17h00), an informative afternoon on speech, communication and resilience for cleft lip and palate will take place at Amsterdam University Medical Centre. The course has been developed with partners from 9 countries is and coordinated by the European Cleft Organisation (ECO)( The open afternoon will provide an overview of the course and we will also run through one of the training modules on resilience.  The course has brought together experts in speech and language therapy and psychology to produce material that can be used to train non-specialists in aspects of communciation and resilience.  It will enable non specialists to help parents identify signs of impairments and offer practical ways of supporting their child who may be experiencing speech and language difficulties and/or psychological challenges associated with having a cleft. More details can be found on the project website Who is this open day for?   Anyone who has an interest in cleft care - especially in relation to communication.  The material is aimed at non-specialists and will be of interest to those who may be supporting cleft teams beyond western Europe who may not have resources to include speech and language therapy and psychology in their cleft team.   Entrance is free. Interested? Places will be limited and if you would like to attend please email Gareth Davies at giving your details (name, hospital, speciality (incl student) by Friday 3 June.  Whilst this is aimed primarily at attendees from the Netherlands, they do have some limited funds that could help towards the costs of anyone traveling from another country.

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8th International Conference on Ectodermal Dysplasias

1 April 2022

  The 8th International Conference on Ectodermal Dysplasia will take place in Paris on 9th-11th June 2022. Oro-dental anomalies are a major concern in Ectodermal Dysplasias (ED). Two main sessions in the conference programme are devoted to dental care and mouth-related issues, which may be of interest to ERN CRANIO clinicians. Click here for more information and to register.   

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