Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ENT disorder? Are you a healthcare professional looking for highly specialised advice?

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ERN CRANIO

The European Reference Network for rare and/or complex craniofacial anomalies and ENT disorders

ERN CRANIO

Latest News

News

ERN CRANIO poster awarded 2nd place at ECRD 2020!

12 May 2020

As a result of the COVID-19 pandemic, the 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020) due to take place in Stockholm will now take place ONLINE on 14 - 15 May 2020.  The ERN CRANIO poster titled 'Patient Journeys: Personal experiences shaping clinical priorities' will be available to view throughout the event. We are delighted that the poster & abstract was also awarded 2nd place following panel review. As a result, it will be presented in the form of a 5-minute oral presentation. This will be given as part of Friday's plenary session 10.00-11.00. Check out the programme here!

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ERN CRANIO newsletter now available! (Extended issue)

4 May 2020

The ERN CRANIO newsletter (Issue 5, May 2020) is now available. Click here to read!

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ERN-wide newsletter & ERN CRANIO entry!

29 April 2020

The ERN-wide European Commission newsletter (April 2020) is now available! Click here to read.  Items include: ERNs and COVID-19, interviews with key players, news from the ERN community & good practices and inspirational stories. Make sure to check out the ERN CRANIO entry on the development of a clinical guideline for craniofacial microsomia! This guideline is due to be published in the Journal of Craniofacial Surgery. Click here to subscribe for future ERN-wide newsletters.     

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