Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ear, nose and throat (ENT) disorder? Are you a healthcare professional looking for highly specialised advice?

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The European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders


Latest News


EJP Research Mobility Fellowship is now open until November 18th!

3 October 2022

EJP RD is pleased to announce that the 6th Research Mobility Fellowship call is open until November 18th! The programme aims to support PhD students, postdocs and medical doctors in training to undertake scientific visits to foster specialised research training outside their country of residence. The exchange can be carried out (1) within the same ERN (Full Members and Affiliated Partners), (2) between different ERNs (Full Members and Affiliated Partners), or (3) between ERN Full Members / Affiliated Partners and non-ERN institutions. Either the home or host (secondment) institution must be a Full Member or Affiliated Partner of an ERN at the time of application and during the proposed period of the training stay. Successful applicants should acquire new competences and knowledge related to their research on rare diseases, present a defined research plan and provide a demonstrable benefit to the ERN of the home and/or host institution. The Research Mobility Fellowships are for stays of 4 weeks to 6 months duration. Please spread the word! The call text and all relevant information can be found here.

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ERN CRANIO newsletter

9 June 2022

  Issue 11 of the ERN CRANIO newsletter is now available, which highlights upcoming events and opportunities - including the ERN CRANIO annual meeting which is due to take place in Berlin in November 2022.  Read more here.    

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Open afternoon: speech, communication and resilience training programme

25 May 2022

  On 9th June 2022 (14h30- 17h00), an informative afternoon on speech, communication and resilience for cleft lip and palate will take place at Amsterdam University Medical Centre. The course has been developed with partners from 9 countries is and coordinated by the European Cleft Organisation (ECO)( The open afternoon will provide an overview of the course and we will also run through one of the training modules on resilience.  The course has brought together experts in speech and language therapy and psychology to produce material that can be used to train non-specialists in aspects of communciation and resilience.  It will enable non specialists to help parents identify signs of impairments and offer practical ways of supporting their child who may be experiencing speech and language difficulties and/or psychological challenges associated with having a cleft. More details can be found on the project website Who is this open day for?   Anyone who has an interest in cleft care - especially in relation to communication.  The material is aimed at non-specialists and will be of interest to those who may be supporting cleft teams beyond western Europe who may not have resources to include speech and language therapy and psychology in their cleft team.   Entrance is free. Interested? Places will be limited and if you would like to attend please email Gareth Davies at giving your details (name, hospital, speciality (incl student) by Friday 3 June.  Whilst this is aimed primarily at attendees from the Netherlands, they do have some limited funds that could help towards the costs of anyone traveling from another country.

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