Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ENT disorder? Are you a healthcare professional looking for highly specialised advice?
The European Reference Network for rare and/or complex craniofacial anomalies and ENT disorders
The final ERN CRANIO newsletter of the year is now available (Issue 4). Click here to read!
Pre-announcement of the EJP RD Joint Transnational Call (JTC) 2020 fostering development of new therapies for rare diseases. Call is officially launched on Dec 13 (http://www.ejprarediseases.org/index.php/joint-transnational-calls/) EJP RD Internal Call for proposals on Clinical Trials Methodology Demonstration Projects (http://www.ejprarediseases.org/index.php/joint-transnational-calls-2/) The announcement of list of granted projects of the EJP RD JTC2019 (http://www.ejprarediseases.org/index.php/funded-projects/) Joint RE(ACT) Congress & IRDiRC Conference (11-14 March 2020, Berlin) - Early bird registration extended until Friday 20 December (https://www.react-congress.org/) You can find all this information in the latest EJP RD newsletter (special edition) which can be downloaded here.
The latest ERN newsletter (December issue) is now available! Click here to read about ERN activities and good practice. This issue also features an interview with Prof. dr. Irene Mathijssen, ERN CRANIO coordinator and chair of the ERN coordinators group.