Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ear, nose and throat (ENT) disorder? Are you a healthcare professional looking for highly specialised advice?
The European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders
ERN CRANIO has officially welcomed all of its (9) new Affiliated Partner hospitals. You can read more about affiliated partnership and our affiliated partner centres here. We are looking forward to collaborating with you all!
The latest ERN CRANIO newsletter is now available (July 2020). Click here to read.
As a result of the COVID-19 pandemic, the 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020) due to take place in Stockholm will now take place ONLINE on 14 - 15 May 2020. The ERN CRANIO poster titled 'Patient Journeys: Personal experiences shaping clinical priorities' will be available to view throughout the event. We are delighted that the poster & abstract was also awarded 2nd place following panel review. As a result, it will be presented in the form of a 5-minute oral presentation. This will be given as part of Friday's plenary session 10.00-11.00. Check out the programme here!