Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ENT disorder? Are you a healthcare professional looking for highly specialised advice?
The European Reference Network for rare and/or complex craniofacial anomalies and ENT disorders
The call for new members to join ERN CRANIO is officially open! It will remain open until 30 November 2019. For more information on the call and to access all relevant documents please visit the European Commission’s ERN website: https://ec.europa.eu/health/ern/consultations/2019_call_membership_en The online application tool has now been activated and is ready for use! The launch of this call also marks the end of the designation period for affiliated partners. Those who have applied for affiliated partnership can also submit an application for full membership. Please get in touch if you have any queries.
The meeting of the ERN Hospital Managers took place in Hôpital Saint Louis (Assistance Publique – Hôpitaux de Paris) in Paris on 16th and 17th May 2019, and was attended by 75 participants including 54 hospital mangers, ERNs coordinators, Member States representatives, patient organisations and other stakeholders and experts in the field of rare diseases and ERNs. This was the third meeting organized for the hospital managers since the creation of the ERNs in 2017. The meeting was organized by the European Commission - DG SANTE. The main aim of this meeting was to consolidate the role of hospital managers in the ERN system and to help facilitate the activities and strategic position of hospitals hosting an ERN member and those who will be doing it in the future Click here to access the report.
The first issue of the European Reference Networks newsletter has now been published by the European Commission. Follow this link for the latest ERN developments and examples of good practice! https://ec.europa.eu/newsroom/sante/newsletter-specific-archive-issue.cfm?archtype=specific&newsletter_service_id=1431&newsletter_issue_id=16186&page=1&fullDate=Thu%2007%20Mar%202019&lang=default