Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ENT disorder? Are you a healthcare professional looking for highly specialised advice?
The European Reference Network for rare and/or complex craniofacial anomalies and ENT disorders
As a result of the COVID-19 pandemic, the 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020) due to take place in Stockholm will now take place ONLINE on 14 - 15 May 2020. The ERN CRANIO poster titled 'Patient Journeys: Personal experiences shaping clinical priorities' will be available to view throughout the event. We are delighted that the poster & abstract was also awarded 2nd place following panel review. As a result, it will be presented in the form of a 5-minute oral presentation. This will be given as part of Friday's plenary session 10.00-11.00. Check out the programme here!
The ERN CRANIO newsletter (Issue 5, May 2020) is now available. Click here to read!
The ERN-wide European Commission newsletter (April 2020) is now available! Click here to read. Items include: ERNs and COVID-19, interviews with key players, news from the ERN community & good practices and inspirational stories. Make sure to check out the ERN CRANIO entry on the development of a clinical guideline for craniofacial microsomia! This guideline is due to be published in the Journal of Craniofacial Surgery. Click here to subscribe for future ERN-wide newsletters.