Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ENT disorder? Are you a healthcare professional looking for highly specialised advice?
The European Reference Network for rare and/or complex craniofacial anomalies and ENT disorders
As a result of the COVID-19 pandemic, the 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020) due to take place in Stockholm will now take place ONLINE on 14 - 16 May 2020. Click here to find out more and follow the LinkedIn page! ERN CRANIO patient representatives are currently preparing a poster to be presented titled 'Patient Journeys: Personal experiences shaping clinical priorities'
The 2nd call for new members to join ERN CRANIO officially closed on 30th November 2019. Applications are currently under review. The European Commission have published instructions for ERN applicants on how to follow their application status and next steps of the process. Click here to find out more!