ERN CRANIO

"The European Reference Network for Rare Craniofacial Anomalies and ENT disorders"

ERN CRANIO

EXPERTISE

"Pooling of knowledge and expertise in the field of rare diseases across Europe"

European Reference Network

What are ERNs?

European Reference Networks (ERNs) are virtual networks involving healthcare providers across Europe. They aim to tackle complex or rare diseases and conditions that require highly specialised treatment and a concentration of knowledge and resources. To review a patient’s diagnosis and treatment, ERN coordinators will convene ‘virtual’ advisory boards of medical specialists across different disciplines, using a dedicated IT platform and telemedicine tools. The knowledge will travel rather than the patients or doctors. This will facilitate equal access to expert advice and best treatment options. It will increase patient’s chances for better, more effective and more efficient treatment.

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What is ERN CRANIO?

The European Reference Network for Craniofacial Anomalies and ENT disorders (ERN CRANIO) was officially established in March 2017 and is one of 24 European Reference Networks co-funded by the European Union (Health Programme). ERN CRANIO involves teams from 29 European hospitals from 11 Member States. Many European patients, particularly children, do not have access to the required care for their rare craniofacial anomaly and related disorders. To counteract this inequality ERN CRANIO focuses on facilitating professionals throughout Europe to share gained knowledge on rare craniofacial anomalies and ENT disorders.

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