Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ear, nose and throat (ENT) disorder? Are you a healthcare professional looking for highly specialised advice?
The European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders
Registrations for the 31st European Dysmorphology Online Workshop are open! The event will be held on 22-25 September 2021 and is supported by ERN ITHACA.This workshop is an excellent way to bring young clinical geneticists and trained dysmorphologists together to share their professional experiences and present their clinical challenges. Young Geneticists are encouraged to submit a presentation! Registration Deadline: June 18th. Program & Registration tool following this link: https://ern-ithaca.eu/eurodysmorpho/registration-abstract/
Issue 8 of the ERN CRANIO newsletter is now available to read. Click here to read the latest ERN CRANIO updates.
ERN CRANIO has developed a series of informative, educational videos for patients with a rare and/or complex craniofacial anomaly and their families. This series provides helpful information on different psychological topics in an accessible format. With the creation of this series, patients and their families across the world have access to a range of practical techniques that can help support psychological wellbeing at challenging times. Click here to view the full press release. You can access the videos via the ERN CRANIO YouTube channel.