Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ear, nose and throat (ENT) disorder? Are you a healthcare professional looking for highly specialised advice?

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The European Reference Network for rare and/or complex craniofacial anomalies and ear, nose and throat (ENT) disorders


Latest News


European Reference Networks: challenges and opportunities 

18 March 2021

  A new paper titled European Reference Networks: challenges and opportunities has been published in the Journal of Community Genetics. This paper outlines some of the challenges faced by ERNs and presents possible solutions and opportunities. Prof. dr. Irene Mathijssen (ERN CRANIO coordinator) is a co-author. Click here to read.

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EJP-RD ERN Research Mobility Fellowship

16 March 2021

  The EJP RD Research Mobility Fellowships funding opportunity is now open until 26th April! The call aims to support PhD students, Postdocs and medical doctors in training to undertake scientific visits fostering specialist research training outside their countries of residence. The exchange can be carried out within the same ERN (Full Members and Affiliated Partners), between different ERNs (Full Members and Affiliated Partners) and between ERN Full Members / Affiliated Partners and non-ERN institutions. Either home or host (secondment) institution must be a Full Member or Affiliated Partner of an ERN at the time when the application is submitted, as well as during the proposed period of the training stay. Successful applicants should acquire new competences and knowledge related to their research on rare diseases, with a defined research plan and demonstrable benefit to the ERN of the home and/or host institution. The research mobility fellowships are meant to cover stays of 4 weeks to 6 months duration. More information HERE: Please let the ERN CRANIO coordination team know if you plan to submit an application. 

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ERN RD Training and Support Program

22 February 2021

The European Joint Programme for Rare Diseases (EJP-RD) have various opportunities available for ERN members and affiliated partners. Two opportunities are provided via the 'ERN RD Training and Support Program'.  The aim of the  ‘ERN RD Training and Support Program‘ is to fill the gap in the available educational offer on rare diseases research by creating and implementing a comprehensive and cohesive training program for different target groups such as researchers and young clinicians working at institutions that are Full Members or Affiliated Partners of the European Reference Networks (ERNs).  Research Workshop calls (X 2 per year) - Current call now open until 7 March 2021! Research Mobility Fellowship Calls (X 2 per year) - Next call opening on 15 March 2021! More information can be found on the EJP-RD website (including information on the impact of COVID-19):  Please keep the ERN CRANIO coordinator and project managers informed if you wish you submit an application. 

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