Are you struggling to get a diagnosis or treatment for a rare and/or complex craniofacial anomaly or ENT disorder? Are you a healthcare professional looking for highly specialised advice?

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The European Reference Network for rare and/or complex craniofacial anomalies and ENT disorders


Latest News


The 10th European Conference on Rare Diseases & Orphan Products

19 November 2019

The 10th European Conference on Rare Diseases & Orphan Products (ECRD 2020) will be held at the Stockholmsmässan Congress Center in Stockholm, Sweden on 15 - 16 May 2020. Click here to find out more and follow the LinkedIn page! Submissions for poster abstracts are now open (until 10th February 2020)  Applications for the Patient Advocate Fellowship Programme are also now open (until 2 December 2019)

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ERN CRANIO October newsletter

25 October 2019

Issue 3 of the ERN CRANIO newsletter is now available.  Click here to view it!

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ERN call for membership!

30 September 2019

The call for new members to join ERN CRANIO is officially open! It will remain open until 30 November 2019. For more information on the call and to access all relevant documents please visit the European Commission’s ERN website: The online application tool has now been activated and is ready for use!  The launch of this call also marks the end of the designation period for affiliated partners. Those who have applied for affiliated partnership can also submit an application for full membership. Please get in touch if you have any queries.   

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